The only reason for time is so that everything doesn't happen at once.
11.25.19
As anyone who has ever written anything of length, be it a book, a newspaper or magazine article, a diary entry, or even a long letter to a friend, writing does take just a bit longer than reading. So, time is my enemy, and it is for us all. Time marches on. Time is fleeting. Time keeps on ticking. Time flies. We've all heard those and many more, but actually, time is an illusion. The only real reason for time is so that everything doesn't happen at once. Most of us think of time as a linear progression from point A to point B, but in reality, it's more of a big ball of ... I digress.
When I intend to sit for an hour or two getting my thoughts together, and type them here, something happens. Tonight, for example, we have just gotten home from the comic shop - where we have been open to close every day for over a week — and even though it is late on a Sunday night, I still have to do payroll, and take care of other things that need attention around here.
Sometimes, I even manage to sit and get it all written, then hit the wrong combination of buttons, or a single button, and everything disappears.
That has happened to me about three times on this blog, and each time, I look at the screen for a minute, do combinations of things to try to get back those words — because, let's face it, there were some brilliant posts that I wrote and were consequentially deleted — then finally resign myself to the fact they are gone. And, I turn off the computer.
We never know what dementia will bring, or what will be the next challenge for Kim to overcome and adjust to for her new normal.
It's not like I'm a stranger to writing.
It's not like I don't know how to write an idea, a blog, an article, an editorial, script or any of number of things.
It's not like I don't know how to organize and edit my thoughts on the fly while I'm writing them. Heck, I did that for newspapers and magazine for more than a dozen years.
I can't tell you how many stories I've written on hard deadlines, barely making it in before sending a whole newspaper to the press — with many of those articles, stories and editorials winning awards from the Associated Press or Texas, New Mexico, or Missouri press associations
It really is just about time.
And, with Kim's dementia progressing, time is ever more pressing.
The good part of the time thing, is that because of this horrible disease, we actually spend even more time together. Not because I have to watch over her. But because it is better for her.
She can drive, but doesn't anymore, because things might confuse her, or stupid things other automobiles do might scare her, and she would react badly. So she rides with me. That means, that if she goes with me to the comic shop, she's there all day with me.
And, that's a bonus for me, because not only does she do what she can to help, but, I like being around her. I always have. I always will.
This year, Kim's birthday fell on Thanksgiving - which it does every seven years or so.
I used to read some of the caregiver support group postings on various social media outlets, when we first stared on this journey.
I don't do that anymore, and really haven't for a while.
That's not a time issue, because reading is so much faster than writing. It's more of a wasted time issue. I often used to find myself wondering if these spouses, these people who have become caregivers of someone they profess to love, ever really did love their spouse.
Or were those words they said, those vows they took, just meaningless. I don't think they like spending time with their partner, and that is a shame for both of them.
So, I don't waste my time there.
We are going into the holiday season at the store. Well, everywhere around the globe, I suppose. Kim's birthday fell on Thanksgiving this year as well, and we always host a pot-luck meal at the shop for anyone wishing to come.
We lost an employee in the first couple of weeks of November, and have been training a replacement for about a week. We have added an online sale, every Monday and Thursday 6-8 pm central time, to what we do at the store. Those sales take the time of the sale, plus many hours to set each up.
All of those things take up extra time. But, luckily for me, Kim is there with me most of the time, so we still have that time together.
The weather has turned colder faster than recent years, and shorter day light hours also mean that bicycle riding mostly takes place indoors on a trainer for me — when I have time. Usually late, late at night. Mostly when I should be sleeping.
I don't get much of that either. Mind you, I am not complaining about any of these things that take time, because I choose to do those things, whether out of necessity, or wanting to.
People with Primary Progressive Aphasia are fighting against a condition in which they will continue to lose their ability to speak, read, write, and/or understand what they hear because PPA results from deterioration of brain tissue important for speech and language.
We never know what dementia will do, or what will be the next challenge for Kim to overcome and adjust to for her new normal.
And, we don't know what that will do to available time, or what new thing we will need to make time for.
Not long ago, another aspect of her having the double whammy of Lewy Body (LBD) and Frontotemporal (FTD) dementias manifested itself.
Another challenge presented itself and has said it will be part of the new normal.
Primary Progressive Aphasia, also called PPA.
Unlike other forms of aphasia that result from stroke or brain injury, PPA is caused by neurodegenerative diseases that cause frontotemporal lobar degeneration - which is what happens with FTD. People with Primary Progressive Aphasia are fighting against a condition in which they will continue to lose their ability to speak, read, write, and/or understand what they hear because PPA results from deterioration of brain tissue important for speech and language.
It is just another in the hurdles we must overcome, and yes, it does mean we spend more time on communication. Something that she might have been able to articulate in just a few short sentences now may take much longer, as it seems to manifest in varying degrees of difficulty ranging from almost normal speech, to stuttering and drawn out words.
So it seems that there are things that want to take my time, and somethings that I have no choice but to spend time on. And some things I need to spend time on, and yet others I want to spend time on.
Those others that I want to spend time on seems to get less and less attention, but I do try. And, as I have vowed before, I will try to make time to get my thoughts down here — after all, that's the reason I started this blog. Sure that means there might be a little less sleep some nights, or trying to squeeze some of a post in, then doing something else that needs to be done, and coming back to it.
Maybe I can find a feature to post a short video, or convert a video or spoken word to type, instead of always having to type it out.
They have something like that, right? Text to speech or something. I wonder if it works for blogs.
While I type, no matter how much time it takes, I'm right here in the same room as Kim, and she is either watching something online, the TV, or possibly looking something up, or trying to help with whatever I've got to do - such as put the bills in order by date, make an entry on my Wunderlist app to remind me of something needing attention in the future, or talking to the kids or grandkids via messenger.
And, while it may take more time for everything going on, and communication with Kim. Time is truly the most valuable thing we can spend. And, if whatever is happening takes more time, and that time I get to spend with my wife, then that will be OK with me.
Because spending time with her is time that is priceless to me.